LINKS WE LOVE
If your baby has been diagnosed with Down syndrome, first of all, congratulations! Parenting a child with Down syndrome can have its challenges but many of us feel like we are #theluckyfew and that there is #nothingdownaboutit. I don't know where you fall on the spectrum of emotions right now but we aim to support you wherever you are. The Down syndrome community is one of the most caring, compassionate, and supportive communities we've ever been a part of. If you have questions, feel free to contact us. If you're not ready for that yet then explore some of the resources below. I highly recommend watching the video, getting involved with a pregnancy group for support, and looking at this book.
Dear Future Mom we watched this over and over while I was pregnant with Julia Grace. It still makes be sob to this day. It is very helpful at making this diagnosis less scary. Several other people I know who had prenatal diagnosis of Down Syndrome found it very helpful as well.
Down Syndrome Diagnosis Network has a vast array of Facebook support groups from pregnancy through the time your child is 4 years old. They also have a yearly retreat. This support network is invaluable and is a safe space to ask questions, air your concerns, and discuss your fears amongst those that "get it". They also have a support group for Dads. Find them on Facebook.
Down Syndrome Pregnancy has several resources available as free downloads. Hard copies can be purchased for a nominal charge. There are books available for friends and family; pregnant mothers; and parents who are bringing a baby with DS home from the hospital. Additionally there are resource available for those coping with the loss of a child who had Down syndrome. Several of the resource are also available in Spanish.
- Many state organizations associated with the National Down Syndrome Society have programs for newly diagnosed families. Find your local organization.
- We have an entire page of resources dedicated to breastfeeding your baby with Down syndrome. Please visit the page to learn more.
- Gigi's Playhouse is a worldwide network of Down syndrome achievement centers.
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