why be normal

Why be normal?

In January of this year, I was driving home after a long and overwhelming day at Boston Children’s hospital when I heard Aimee Mullins on “The Moth” podcast. She is a model, athlete, and activist as well as a double amputee. Listening to her story I was inspired by everything she had accomplished not only in spite of being a double amputee but in some ways because of it. I pulled out my phone and recorded a short spoken word piece about reconsidering my approach to raising my daughter with Down syndrome. I didn’t know what I was going to do with it but I knew I wanted to share it. A few weeks later we were visiting Tony and Julia Bacon, close family friends and an amazingly creative couple and I played the sound recording for them. Tony is an award-winning filmmaker and was inspired by the piece and thought that the sentiment might resonate with parents of all kinds. I could see that he was already envisioning my words as a short movie. Several weeks of collaboration later and we are proud to share with you this video that we hope inspires you to reimagine life with Down syndrome. We are so happy to have you on this journey with us.  For more information sign up for our newsletter at www.juliasway.com or find us on facebook @ https://www.facebook.com/juliasway2016/.